DEAR DR. GOTT:
I have followed your column for a number of years and believe my problem will be a first for you.

I have been diagnosed with Dercum’s disease. I knew for a long time that I had a problem but was turned away from many physicians who thought I had a mental problem or was a hypochondriac. As far as I can discern there is no current research in this country or even any interest in the problem. It is listed among the rare diseases and that is as far as I can go.

I am married to a physician who is just now beginning to understand the extensive problems that come along with this condition. I also feel that there are many women who are suffering from Dercum’s but going undiagnosed because they are simply passed off as fat or crazy.

I would like to know if you have any recent information on Dercum’s disease. [Read more...]