DEAR DR. GOTT: This letter is in regards to your recent article concerning the woman with Behcet’s disease.
I was diagnosed with Behcet’s in 1990 and saw 27 doctors before being diagnosed and finding my way to remission. The woman in your article is suffering from one of the worst parts of Behcet’s: the inability to eat due to mouth and throat lesions. She is starving to death, and at this point, food is the medicine that she needs more than anything. This, too, happened to me. I lost 80 pounds and was in bed for months, waiting to die. Finally, a doctor prescribed Costanzi’s solution, a compound used for those with mouth cancer, etc. I know you cannot prescribe medication, but this woman needs to know that Costanzi’s will allow her to swallow again. It kills the pain long enough to take those much-needed bites of food. All she needs to do is swish and swallow, wait a few moments, and then eat or drink.
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