DEAR DR. GOTT: A couple of years ago, I was diagnosed with alopecia universalis. I saw my family doctor and three different dermatologists. They ran a few different tests, but nothing came up.
I realize this is not a death sentence, but it has affected my life in every which way. I did buy a wig, but that is only covering up the problem.
If you have any medical advice on this topic, I would greatly appreciate it. I guess I should mention that I am a 53-year-old woman, basically in good health.
DEAR READER: Alopecia universalis is a condition that causes a total loss of all body and scalp hair. It is the most severe form of alopecia. Other forms include alopecia areata, which causes round patches of hair loss on the scalp and body, and alopecia totalis, which causes a total loss of hair on the scalp only.
The National Institute of Arthritis and Musculoskeletal and Skin Disorders says alopecia areata is considered an autoimmune disorder.
Treatment includes steroid injections under the skin surface, ultraviolet-light therapy and topical corticosteroids. Drugs may be applied topically as well to stimulate hair growth.
Full regrowth of hair may occur, but those with eczema, long-term alopecia or alopecia at a young age may experience permanent hair loss.
The loss of hair, especially for women, can be emotionally upsetting and traumatic. There is little known about the condition and its cause; therefore, few effective treatments are available. Make an appointment with a therapist to work through your feelings and learn ways to cope with your condition. If you can come to accept that there is little you can do and that the condition is not your fault, you may improve your emotional state and quality of life.
You may wish to make an appointment with a dermatologist to discuss the condition and keep up on any new treatment options. He or she may also be able to tell you whether there are any clinical trials testing new treatments for which you may qualify. There is also a nonprofit group for women with alopecia called Bald Girls Do Lunch (www.BaldGirlsDoLunch.org) that provides information and support.
To provide related information, I am sending you a copy of my Health Report “Medical Specialists.” Other readers who would like a copy should send a self-addressed stamped No. 10 envelope and a $2 check or money order payable to Newsletter and mailed to Newsletter, P.O. Box 167, Wickliffe, OH 44092. Be sure to mention the title or print an order form off my website at www.AskDrGottMD.com.
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